Of particular note was the active participation of many patients and families with rare disorders in the run that was in Bangalore's iconic Cubban Park. The event attracted about 2500 participants and was the first of its kind in India. ORDI & CENTOGENE call upon the Government of India to recognize the immense difficulties faced by patients with rare disorders in diagnosis and treatment. Due to a lack of awareness even in the medical community, many patients are not being diagnosed early enough for effective treatment to be instituted. The patient support groups are calling for a 'Orphan Drug' act along the lines of similar legislation in the EU & US.
CENTOGENE participated at the RaceFor7
- Rare Disease Day 2016 charity event in Rostock
- Supporting the Rare Disease Day 2016 in Peru