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Personalized Treatment Management for Gaucher Patients

Innovative Support for Gaucher Specialists

Improving global understanding of Gaucher Disease

  1. myLSDapp

For Gaucher Patients

An easy to use app to monitor and manage treatment

  • A clear and simple overview of your treatment
  • Monitor biomarker levels using free CentoCard®
  • Manage treatment diary with calendar and reminders
  • Share quality of life information and results with physician
  • Request, receive, and store biomarker results

Contribute to the Transformation of Gaucher Disease

Insights to help develop treatment approaches

  • Improve the long-term and sustainable patient treatment
  • Help Gaucher specialists to drive treatment research
  • Worldwide anonymized Gaucher patient information to help Gaucher treatment research
  • 100% consent-based, with full GDPR and HIPPA compliance - CuriPriSe certified

How it works


Download myLSDapp to smartphone


Using myLSDapp:
• Register and provide full consent
• Authorize and enter physician data
• Request CentoCard®

 


During treatment:
• Blood collection using CentoCard®
• Complete app QoL questionnaire



Biomarker for treatment monitoring: on app for patients, via secure web for physicians 

Trace.

myLSDapp delivers the most up-to-date information from your biomarker levels directly to your device. This includes easy-to-understand visuals of disease progression and the effectiveness of treatment.

In addition, the app allows you to add your prescribed treatment course and set up reminders timelines.

Get a clear and simple overview of your biomarker results.

Track.

Understand the relationship between your biomarker levels and overall well-being by answering questions from quality of life quizzes.

The more information you track, the more insight your physician will have for your treatment.


Keep track of your quality of life.

Transform.

Authorize your physician to follow your progress so that your scheduled visits become more effective.

All biomarker test results, along with your quality of life data, will be visible in myLSD to give you and your physician full transparency on all aspects of treatment and allow to receive the best care possible.

Transform healthcare for Gaucher.

For Gaucher Specialists

myLSDapp provides your patients with biomarker testing and full transparency of their medical results

  • Get a clear and simple overview of your patients' biomarker results
  • Keep track of your patients' quality of life
  • Transform healthcare for Gaucher

Monitor Your Patients' Condition

Lyso-Gb1 has been identified as the most effective biomarker for Gaucher disease and can be easily measured in blood.1

Reference

1 Arkadir, D. , Dinur, T. , Revel-Vilk, S. , Becker Cohen, M. , Cozma, C. , Hovakimyan, M. , Eichler, S. , Rolfs, A. and Zimran, A.Glucosylsphingosine is a reliable response biomarker in Gaucher disease. Am J Hematol.2018;93:140-2.

Continuous measurement of Lyso-Gb1 biomarker is essential when assessing Gaucher disease.

Tracking Lyso-Gb1 aides in documenting disease progression and the benefit of treatment. This data makes it possible to examine the efficacy of therapy and, if necessary, to explore additional or alternative treatment methods.


Login for physicians


*myLSDapp is currently not available in all regions.

Trace.

myLSDapp documents your patients´ Lyso-Gb1 biomarker test results and treatment courses, with easy-to-understand visuals.


Your patients can create their own disease management calendar and set up reminders.



Get a clear and simple overview of biomarker results and monitor treatment.

Track.

Maximize the outcome of patient visits and obtain real-time, detailed metrics of your patients’ quality of life from quizzes that cover pain, mood, and overall health.

By encouraging your patients to closely monitor their condition, you will have a better view of treatment efficacy.


Keep track of your patients' quality of life.

Transform.

Drive forward innovative treatment methods with the only electronic database of disease progression that combines a patients´ medical and quality of life data in one simple system.

By monitoring treatment together, you and your patients are able to produce the best care possible.



Transform healthcare for Gaucher.


myLSDapp provides you with biomarker testing and full transparency of your medical results

  • Get a clear and simple overview of your biomarker results
  • Keep track of your quality of life
  • Transform healthcare for Gaucher

*myLSDapp is currently not available in all regions.


Monitor your Condition

A biomarker is a measurable indicator of a biological state or condition. Biomarkers bring rationality to the treatment of patients with rare diseases and can be used as a measure of therapy, efficacy and a guide for therapy dosage.

Lyso-Gb1 has been identified as the most effective biomarker for Gaucher disease and can be easily measured in blood.1

Reference:

1 Arkadir, D. , Dinur, T. , Revel-Vilk, S. , Becker Cohen, M. , Cozma, C. , Hovakimyan, M. , Eichler, S. , Rolfs, A. and Zimran, A. (2018), Glucosylsphingosine is a reliable response biomarker in Gaucher disease. Am J Hematol.

Measuring biomarker Lyso-Gb1 is essential when being treated for Gaucher disease. Tracking Lyso-Gb1 levels aides in documenting your disease progression and the benefits of treatment. This data makes it possible to examine the efficacy of your therapy and, if necessary, to explore additional or alternative treatment methods.