Program 29. February 2020

Frequently Misdiagnosed Diseases – The Burdens Rare Disease Patients Face

WHEN: February 29, 2020
VENUE: Avari Lahore Hotel
LANGUAGE: Urdu / English (translation provided)

 

Entry: Free

 

CENTOGENE’s Rare Disease Day 2020 is a global initiative with events in Lahore, Berlin, and Mexico City for awareness raising amongst decision makers, researchers, health professionals, and the general public – signaling our global responsibility and dedication to patients, patient organizations, and local physicians around the world.


9:00 - 09:15

Welcome Address

PROF. HUMA CHEEMA, Head of Pediatric Gastroenterology Department at Children Hospital in Lahore
PROF. PETER BAUER, Chief Genomic Officer at CENTOGENE

9:10 - 9:30

German Embassy, TBC

9:40 - 10:00

Keynote Speech: Improving the Situation for Rare Diseases Patients in Pakistan

PROF. HUMA CHEEMA, Head of Pediatric Gastroenterology Department at Children Hospital in Lahore

10:00 - 10:20 

Children with Genetic Diseases in Lahore & Medical Treatments at Lahore Hospital

Director Children’s Hospital of Lahore

10:20 - 10:40

Rare Disease Patient Advocacy Groups in Pakistan

ATIF EJAZ QURESHI, President of Lysosomal Storage Society of Pakistan

10:40 - 11:00

Rare Disease Patient Advocacy Groups in Pakistan

Patient Organization Representative, TBC

11:00 - 11:45

Coffee Break

11:45 - 12:15

Voices of Rare Disease Patients

Patient Testimonies

12:15 - 12:45

Supporting Disabled Patients with Rare Diseases in Pakistan

ASSIM ZAFARA, Director of Saaya Association
SARWAT MIRZA, Director Hands International

12:45 - 13:00

Collaboration Between CENTOGENE and the Children’s Hospital Lahore

PROF. PETER BAUER, Chief Genomic Officer at CENTOGENE

13:00 - 13:30

Panel Discussion: Meeting Unmet Needs of Rare Disease Patients

ATIF EHAZ QURESHI, President of Lysosomal Storage Society of Pakistan
ASSIM ZAFAR, Director of Saaya Association
SARWAT MIRZA, Director Hands International
Lahore Hospital Physician, TBC
Politician, Pakistan Ministry of Health, TBC

13:30 - 13:40

Summary and Closing Remarks

PROF. HUMA CHEEMA, Head of Pediatric Gastroenterology Department at Children Hospital in Lahore

13:40 - 13:50

Greetings from Berlin Conference

13:50 - 14:50

Lunch


In parallel to the formal program:

  • Free family photos will be taken throughout the event
  • Child care and entertainment will be provided

The program is subject to changes.