Filmmaker: David Sieveking
David Sieveking is a filmmaker and author – having published several autobiographical cinema documentaries and non-fiction books since completing his film studies in Berlin. His most successful film and non-fiction book project to date is Vergiss mein nicht, which portrays his mother's journey with Alzheimer's disease and shines a spotlight on the taboo subject of dementia.
Music: Christoph Sietzen
Christoph Sietzen has been praised by the media as an outstanding talent – a refreshingly natural musician notable for his technical mastery and powerful stage presence. At age 12, Christoph gave his debut at the Salzburg Festival and was a prize winner at the prestigious ARD International Music Competition in 2014. Additionally, the European Concert Hall Organisation (ECHO) named him a Rising Star for the 2017/2018 season. He also received an OPUS KLASSIK in 2019 as Young Artist of the Year for his album Incantations.
Christoph Sietzen will be playing:
Iannis Xenakis: Rebonds A et B pour Multipercussion
Andrew Thomas: Merlin for solo Marimba
Filmmaker: Tom Neitzke
Initially working as a photographer for music publishers and film productions in the eighties, Tom Neitzke transitioned into his career in television design at the beginning of the nineties, with various works in the field of music video, concepts, and the implementation of entire broadcast designs. At the end of the nineties, he started his extensive work in the field of image film. Parallel to this, Tom Neitzke created the design packaging for numerous formats and documentaries.
Originally creating image films for CENTOGENE, Tom joined the company full-time in 2019. In autumn of 2019, he accompanied a team from CENTOGENE on a charity testing program in Lahore ─ documenting the impact and solutions the company brings to those affected by rare diseases.
Filmmaker: Elle Ralph
London born, Elle Ralph is an enthusiastic director with a passion for documentary filmmaking. Her excitement for filmmaking began when she was 17 and worked with Chocolate Films Production Company to create the 1000 Londoners documentary. After mainly directing and producing narrative films and commercials in recent years, Elle has enjoyed developing and shaping her documentary work into what it is today. Elle achieved a First Class Honors Degree in Film Production at The University of Gloucestershire in 2019 and is now working in the film industry as a Financial Film Consultant at Studio Pow in Soho.
Filmmakers: DISORDER FILM FESTIVAL
Tess is Not Alone directed by Bo Bigelow - 8 minutes
Tess's parents were in search of a diagnosis. Armed only with the name of her mutated gene they took to Reddit and social media and with in 12 hours were in contact with the leading researcher for a disease so rare it had no name. Tess was patient number 8. Through the efforts of her parents there are now 53 patient families banded together to find a cure for USP7.
Menkes Disease: Finding Help & Hope directed by Daniel DeFabio - 12 minutes
Boys with Menkes disease live 3-10 years if untreated. But treatment needs to occur in the first 10 days of life. This makes early detection and awareness of the disease critical. Academy Award nominated actress Mary McDonnell narrates this look at three families facing Menkes Disease.
Unconditional, Raising a Glass Child with a PACS1 sibling directed by Jon Dorflinger - 10 minutes
The Poague Zellinger family are facing PACS1 syndrome which affects their five year old son Finn. But they are equally concerned with the impacts on his healthy brother. The phrase glass child refers to a sibling who might be neglected or given less attention because their brother or sister has more intense or dramatic needs.
Finn directed by Christian Schultz - 7 minutes
Finn is celebrating his third birthday. His parents struggle with “pre-grieving” their son and the fact that he may not enjoy many more birthdays. Hunter Syndrome will rob him of his abilities and end his life early. Finn's parents work to create a legacy for their son and hope for other's facing this disease.
Physical Theater: Martha Labil
Performer, comedian, acrobat, and more!
Martha Laschkolnig, going by the alias Martha Labil, slips easily from one character to another and manages to entertain and enchant without word and with unusual, poetic, often simple pictures.
Martha Laschkolnig is a clown, acrobat, and comedian. She was born in Linz and studied painting and graphics at the Academy of Fine Arts in Vienna. Today she amazes children and adults alike at festivals and theatres throughout Europe, most recently at the Vienna Philharmonic New Year's Concert 2020.
Music: Wave Quartet
Bogdan Bacanu, Airi Kitamura, Nico Gerstmayer, Christoph Sietzen
The Wave Quartet, founded by Bogdan Bacanu, made their debut in 2008 at the Berlin Konzerthaus, performing a Bach Concerto in a version for four marimbas. Both the transcription and the performance were praised for respecting Bach’s original score and the spirit of a historically informed performance. Since then, the music of Bach and contemporaries has been of key importance in the Wave Quartet’s broad repertoire that extends as far as Astor Piazzolla to the current new arrangement of Bizet’s Carmen, which was released on CD in Autumn 2019. Concerts and masterclasses have taken the Wave Quartet around the world to venues such as Cologne Philharmonie, Elbphilharmonie Hamburg, Konzerthaus Berlin and Vienna, Müpa Budapest, Town Hall Birmingham, Bozar Brussels, Concertgebouw Amsterdam, and Suntory Hall Tokyo.
The Wave Quartet will be playing:
The Wave Quartet: Carmen-Suite (new arrangement of Georges Bizet's Carmen)
Suzanne Vega (arr. Wave Quartet): Gipsy
Avner Dorman: Udacrep Akubrad
Music: SHAKE STEW
Led by the young Austrian bass star Lukas Kranzelbinder, Shake Stew is one of the most exciting European jazz formations. After playing more than 25 gigs during the first months following their debut at the International Jazz Festival Saalfelden in 2016 and selling out their debut record, “The Golden Fang” within half a year, the unique septet is conquering the music world with a hypnotic mixture of afrobeat and jazz grooves shaken up by the intense and mysterious soundscapes created with a combination of three horns, two drummers, and two bass players.
Lukas Kranzelbinder: Bass, Guembri, Bandleader
Clemens Salesny: Alto Saxophone, Stritch
Johannes Schleiermacher: Tenor Saxophone, Flute
Mario Rom: Trumpet
Christian Wendt: Bass
Nikolaus Dolp: Percussion
Andreas Haberl: Percussion