{"id":10743,"date":"2026-08-03T09:45:10","date_gmt":"2026-08-03T09:45:10","guid":{"rendered":"https:\/\/www.centogene.com\/?p=10743"},"modified":"2026-08-03T09:52:57","modified_gmt":"2026-08-03T09:52:57","slug":"a-centogene-apac-amplia-seu-compromisso-com-a-comunidade-de-doencas-raras-de-taiwan","status":"publish","type":"post","link":"https:\/\/www.centogene.com\/pt\/centogene-apac-expands-commitment-to-taiwans-rare-disease-community\/","title":{"rendered":"A CENTOGENE APAC amplia seu compromisso com a comunidade de doen\u00e7as raras de Taiwan."},"content":{"rendered":"

Quando a CENTOGENE APAC inaugurou oficialmente um escrit\u00f3rio em Taiwan, a equipe queria que o momento tivesse um significado que fosse al\u00e9m da ocasi\u00e3o em si. Para marcar esse marco, e no esp\u00edrito do 20\u00ba anivers\u00e1rio da CENTOGENE como uma empresa global de doen\u00e7as raras, o escrit\u00f3rio da APAC doou solu\u00e7\u00f5es de Sequenciamento de Exoma Completo (WES) para a Funda\u00e7\u00e3o Taiwanesa para Doen\u00e7as Raras (TFRD). Foi um gesto deliberado e sincero: uma forma de dizer que nossa presen\u00e7a aqui tamb\u00e9m significa fazer parte desta comunidade.
Duas d\u00e9cadas no setor de doen\u00e7as raras nos ensinaram algo que nenhum dado isolado consegue capturar completamente. Por tr\u00e1s de cada amostra, cada resultado de sequenciamento, cada relat\u00f3rio que chega \u00e0 mesa de um m\u00e9dico, existe uma fam\u00edlia em algum lugar esperando por uma luz no fim de um t\u00fanel muito longo. Este anivers\u00e1rio nos pareceu o momento certo para retribuir \u00e0s comunidades que sempre existimos para servir.<\/p>\n\n\n\n

\n
\"\"<\/figure>\n<\/figure>\n\n\n\n

Para Andy Chang, CEO da regi\u00e3o \u00c1sia-Pac\u00edfico, esse marco tem um significado que vai al\u00e9m da estrat\u00e9gia.<\/p>\n\n\n\n

\n

\u201cTendo trabalhado nesta regi\u00e3o durante anos, vi em primeira m\u00e3o os desafios que as fam\u00edlias enfrentam para obter um diagn\u00f3stico a tempo. Trazer a CENTOGENE para a regi\u00e3o da \u00c1sia-Pac\u00edfico, e especificamente para Taiwan, teve como objetivo abrir o acesso a solu\u00e7\u00f5es mais avan\u00e7adas para os pacientes e retribuir \u00e0 comunidade da qual venho, garantindo que as fam\u00edlias aqui tenham a mesma oportunidade de obter respostas que qualquer outra pessoa no mundo.\u201c
\u2013 Andy Chang, CEO da CENTOGENE APAC para a regi\u00e3o \u00c1sia-Pac\u00edfico<\/p>\n<\/blockquote>\n\n\n\n

Criando ra\u00edzes na comunidade: uma visita ao Centro de Bem-Estar para Doen\u00e7as Raras<\/h2>\n\n\n\n

Em abril, Emily Liang, Gerente Geral da CENTOGENE APAC, participou do 4\u00ba Festival de M\u00fasica Osmanthus e do Dia da Fam\u00edlia com Doen\u00e7as Raras no Centro de Bem-Estar para Doen\u00e7as Raras, um santu\u00e1rio de cura situado em Guanxi, Hsinchu \u2013 constru\u00eddo pela TFRD em 2022 para oferecer \u00e0s fam\u00edlias com doen\u00e7as raras um lugar para se reconectarem e encontrarem for\u00e7a juntas.
Ao percorrer o local, ouvir a m\u00fasica e conversar com as fam\u00edlias naquele dia, Emily se sentiu tocada de maneiras que nenhuma sala de confer\u00eancias ou relat\u00f3rio cl\u00ednico poderia reproduzir.<\/p>\n\n\n\n

\n

\u201cO que me marcou n\u00e3o foi apenas a resili\u00eancia dos pacientes. Foram as fam\u00edlias \u2014 as m\u00e3es, os pais, os irm\u00e3os. Aqueles que se mant\u00eam calmos e firmes em meio \u00e0s tempestades, dia ap\u00f3s dia, sem reconhecimento, sem descanso.\u201d
\u2013 Emily Liang, Gerente Geral para o Nordeste Asi\u00e1tico, CENTOGENE APAC<\/p>\n<\/blockquote>\n\n\n\n

Uma doen\u00e7a rara raramente \u00e9 um fardo carregado por uma \u00fanica pessoa. Ela se espalha silenciosamente por toda a fam\u00edlia: pelas noites sem dormir, pelas consultas com m\u00e9dicos que ainda n\u00e3o t\u00eam respostas e pelo trabalho lento e \u00e1rduo de aprender a se agarrar \u00e0 esperan\u00e7a sem nenhuma certeza na qual se apoiar.
A tarde em Guanxi transformou a maneira como pensamos sobre o nosso papel \u2013 n\u00e3o simplesmente como uma empresa que fornece solu\u00e7\u00f5es de teste, mas como uma companheira nessa jornada, aquela que luta ao lado deles.<\/p>\n\n\n\n

\"\"<\/figure>\n\n\n\n

Uma nova colabora\u00e7\u00e3o: CentoGenome MOx 1.0 para pacientes taiwaneses<\/h2>\n\n\n\n

Nosso compromisso com a comunidade de doen\u00e7as raras de Taiwan continua com um novo programa de colabora\u00e7\u00e3o entre a CENTOGENE e a TFRD. Em vigor de 1\u00ba de junho a 30 de novembro de 2026, esta iniciativa torna o teste CentoGenome MOx 1.0 acess\u00edvel a pacientes taiwaneses que j\u00e1 se submeteram ao sequenciamento de exoma completo (WES), mas que ainda n\u00e3o possuem um diagn\u00f3stico confirmado.<\/p>\n\n\n\n

\n

\u201cPara muitas fam\u00edlias, encontrar uma resposta significou anos de incerteza. Com as solu\u00e7\u00f5es avan\u00e7adas da CENTOGENE agora dispon\u00edveis em Taiwan, pacientes que antes ficavam sem respostas podem ir al\u00e9m das limita\u00e7\u00f5es dos m\u00e9todos convencionais e obter uma compreens\u00e3o mais profunda de sua condi\u00e7\u00e3o. Isso significa uma nova esperan\u00e7a e, em \u00faltima an\u00e1lise, melhores resultados e qualidade de vida para os pacientes.\u201d
\u2013 Ruth Chen, CEO da Funda\u00e7\u00e3o Taiwanesa para Doen\u00e7as Raras (TFRD)<\/p>\n<\/blockquote>\n\n\n\n

Para obter mais detalhes, visite o p\u00e1gina do programa<\/a>.<\/p>","protected":false},"excerpt":{"rendered":"

When CENTOGENE APAC officially opened an office in Taiwan, the team wanted the moment to mean something beyond the occasion […]<\/p>\n","protected":false},"author":4,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"inline_featured_image":false,"footnotes":""},"categories":[1],"tags":[],"class_list":["post-10743","post","type-post","status-publish","format-standard","hentry","category-uncategorized"],"acf":[],"yoast_head":"\nCENTOGENE APAC Expands Commitment to Taiwan's Rare Disease Community | CENTOGENE<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.centogene.com\/pt\/a-centogene-apac-amplia-seu-compromisso-com-a-comunidade-de-doencas-raras-de-taiwan\/\" \/>\n<meta property=\"og:locale\" content=\"pt_BR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta 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