{"id":2454,"date":"2016-03-04T00:00:00","date_gmt":"2016-03-04T00:00:00","guid":{"rendered":"http:\/\/centogene.vl22350.dinaserver.com\/2454"},"modified":"2016-03-04T00:00:00","modified_gmt":"2016-03-04T00:00:00","slug":"dzien-chorob-rzadkich-2016-wydarzenie-charytatywne-w-rostocku","status":"publish","type":"post","link":"https:\/\/www.centogene.com\/pl\/rare-disease-day-2016-charity-event-in-rostock\/","title":{"rendered":"Dzie\u0144 Chor\u00f3b Rzadkich 2016 \u2013 wydarzenie charytatywne w Rostocku"},"content":{"rendered":"<p>29 lutego przypada 9. Mi\u0119dzynarodowy Dzie\u0144 Chor\u00f3b Rzadkich 2016, kt\u00f3rego tematem przewodnim jest \u2018G\u0142os pacjenta \u2013 sprawiamy, by g\u0142os os\u00f3b cierpi\u0105cych na choroby rzadkie zosta\u0142 us\u0142yszany\u2019. Dzie\u0144 ten ma na celu uznanie kluczowej roli, jak\u0105 pacjenci odgrywaj\u0105 w wyra\u017caniu swoich potrzeb i inicjowaniu zmian, kt\u00f3re poprawiaj\u0105 ich \u017cycie, \u017cycie ich rodzin i opiekun\u00f3w.<\/p>\n<p>CENTOGENE po raz kolejny zorganizowa\u0142o akcj\u0119 charytatywn\u0105, aby podnie\u015b\u0107 \u015bwiadomo\u015b\u0107, poinformowa\u0107 i edukowa\u0107 spo\u0142ecze\u0144stwo. Wszyscy zostali zach\u0119ceni do wypolerowania \u0142y\u017cew i wyruszenia na tras\u0119 w szczytnym celu. Zanim l\u00f3d zosta\u0142 \u2018wypalony\u2019, zainteresowani mogli uzyska\u0107 informacje na temat rzadkich chor\u00f3b i wyzwa\u0144, z jakimi boryka si\u0119 ka\u017cdy pacjent, cz\u0142onek rodziny i lekarz w leczeniu rzadkich chor\u00f3b.<\/p>\n<p>Za ka\u017cdy kilometr \u201aspalony\u2018 na lodzie, CENTOGENE przekazuje 1 euro organizacjom pacjent\u00f3w, kt\u00f3re na co dzie\u0144 opiekuj\u0105 si\u0119 pacjentami i ich rodzinami. W tym roku wspieramy grup\u0119 wsparcia Niemann-Pick, Hypophosphatasia Germany eV oraz grup\u0119 wsparcia pacjent\u00f3w z chorob\u0105 Huntingtona.<\/p>","protected":false},"excerpt":{"rendered":"<p>29 lutego przypada 9. Mi\u0119dzynarodowy Dzie\u0144 Chor\u00f3b Rzadkich 2016, kt\u00f3rego tematem przewodnim jest \u2018G\u0142os pacjenta \u2013 sprawiamy, by g\u0142os os\u00f3b cierpi\u0105cych na choroby rzadkie zosta\u0142 us\u0142yszany\u2019. Dzie\u0144 ten ma na celu uznanie kluczowej roli, jak\u0105 pacjenci odgrywaj\u0105 w wyra\u017caniu swoich potrzeb i inicjowaniu zmian, kt\u00f3re poprawiaj\u0105 ich \u017cycie.<\/p>","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"inline_featured_image":false,"footnotes":""},"categories":[1],"tags":[],"class_list":["post-2454","post","type-post","status-publish","format-standard","hentry","category-uncategorized"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.1 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Rare Disease Day 2016 charity event in Rostock | CENTOGENE<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" 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