{"id":2453,"date":"2016-02-29T00:00:00","date_gmt":"2016-02-29T00:00:00","guid":{"rendered":"http:\/\/centogene.vl22350.dinaserver.com\/2453"},"modified":"2016-02-29T00:00:00","modified_gmt":"2016-02-29T00:00:00","slug":"centogene-wzial-udzial-w-wyscigu-racefor7","status":"publish","type":"post","link":"https:\/\/www.centogene.com\/pl\/centogene-participated-at-the-racefor7\/","title":{"rendered":"CENTOGENE wzi\u0105\u0142 udzia\u0142 w RaceFor7"},"content":{"rendered":"<p>Na szczeg\u00f3ln\u0105 uwag\u0119 zas\u0142uguje aktywny udzia\u0142 wielu pacjent\u00f3w i rodzin z rzadkimi schorzeniami w biegu, kt\u00f3ry odby\u0142 si\u0119 w kultowym parku Cubban w Bangalore. Wydarzenie przyci\u0105gn\u0119\u0142o oko\u0142o 2500 uczestnik\u00f3w i by\u0142o pierwszym tego typu wydarzeniem w Indiach. ORDI i CENTOGENE apeluj\u0105 do rz\u0105du Indii o uznanie ogromnych trudno\u015bci, z jakimi borykaj\u0105 si\u0119 pacjenci z rzadkimi schorzeniami w zakresie diagnostyki i leczenia. Z powodu braku \u015bwiadomo\u015bci, nawet w \u015brodowisku medycznym, wielu pacjent\u00f3w nie jest diagnozowanych wystarczaj\u0105co wcze\u015bnie, aby wdro\u017cy\u0107 skuteczne leczenie. Grupy wsparcia pacjent\u00f3w domagaj\u0105 si\u0119 uchwalenia ustawy o \u2018lekach sierocych\u2019 na wz\u00f3r podobnych przepis\u00f3w obowi\u0105zuj\u0105cych w UE i USA.<\/p>","protected":false},"excerpt":{"rendered":"<p>Firma CENTOGENE z dum\u0105 wsp\u00f3\u0142pracuje z wydarzeniem Race for 7 organizowanym przez Organizacj\u0119 Chor\u00f3b Rzadkich w Indiach. Bieg spo\u0142eczny, kt\u00f3ry odby\u0142 si\u0119 28 lutego rano \u2013 w Dniu Chor\u00f3b Rzadkich \u2013 zgromadzi\u0142 ogromn\u0105 liczb\u0119 uczestnik\u00f3w z r\u00f3\u017cnych \u015brodowisk.<\/p>","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"inline_featured_image":false,"footnotes":""},"categories":[1],"tags":[],"class_list":["post-2453","post","type-post","status-publish","format-standard","hentry","category-uncategorized"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.2 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>CENTOGENE participated at the RaceFor7 | CENTOGENE<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.centogene.com\/pl\/centogene-wzial-udzial-w-wyscigu-racefor7\/\" \/>\n<meta property=\"og:locale\" content=\"pl_PL\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"CENTOGENE participated at the RaceFor7 | CENTOGENE\" \/>\n<meta property=\"og:description\" content=\"CENTOGENE is proud to be associated with the Race for 7 event organized by the Organization of Rare Diseases of India. 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