{"id":10743,"date":"2026-08-03T09:45:10","date_gmt":"2026-08-03T09:45:10","guid":{"rendered":"https:\/\/www.centogene.com\/?p=10743"},"modified":"2026-08-03T09:52:57","modified_gmt":"2026-08-03T09:52:57","slug":"centogene-apac-zwieksza-zaangazowanie-na-rzecz-spolecznosci-rzadkich-chorob-na-tajwanie","status":"publish","type":"post","link":"https:\/\/www.centogene.com\/pl\/centogene-apac-expands-commitment-to-taiwans-rare-disease-community\/","title":{"rendered":"CENTOGENE APAC rozszerza zaanga\u017cowanie na rzecz spo\u0142eczno\u015bci chor\u00f3b rzadkich na Tajwanie"},"content":{"rendered":"

Kiedy CENTOGENE APAC oficjalnie otworzy\u0142o biuro na Tajwanie, zesp\u00f3\u0142 chcia\u0142, aby ta chwila mia\u0142a znaczenie wykraczaj\u0105ce poza samo wydarzenie. Aby uczci\u0107 ten kamie\u0144 milowy i w duchu 20. rocznicy istnienia CENTOGENE jako globalnej firmy zajmuj\u0105cej si\u0119 chorobami rzadkimi, biuro APAC przekaza\u0142o Tajwa\u0144skiej Fundacji na rzecz Chor\u00f3b Rzadkich (TFRD) rozwi\u0105zania z zakresu sekwencjonowania ca\u0142ego eksomu (WES). By\u0142 to celowy i serdeczny gest: spos\u00f3b na powiedzenie, \u017ce nasza obecno\u015b\u0107 tutaj oznacza r\u00f3wnie\u017c stanie si\u0119 cz\u0119\u015bci\u0105 tej spo\u0142eczno\u015bci.
Dwie dekady w sektorze chor\u00f3b rzadkich nauczy\u0142y nas czego\u015b, czego \u017caden punkt danych nie jest w stanie w pe\u0142ni uchwyci\u0107. Za ka\u017cd\u0105 pr\u00f3bk\u0105, ka\u017cdym wynikiem sekwencjonowania, ka\u017cdym raportem, kt\u00f3ry trafia na biurko lekarza, kryje si\u0119 gdzie\u015b rodzina czekaj\u0105ca na \u015bwiate\u0142ko w tunelu. Ta rocznica wydawa\u0142a si\u0119 idealnym momentem, aby odwdzi\u0119czy\u0107 si\u0119 spo\u0142eczno\u015bciom, kt\u00f3rym od zawsze s\u0142u\u017cyli\u015bmy.<\/p>\n\n\n\n

\n
\"\"<\/figure>\n<\/figure>\n\n\n\n

Dla Andy'ego Changa, dyrektora generalnego regionu Azji i Pacyfiku, ten kamie\u0144 milowy ma znaczenie wykraczaj\u0105ce poza strategi\u0119.<\/p>\n\n\n\n

\n

\u201cPracuj\u0105c w tym regionie od lat, widzia\u0142em na w\u0142asne oczy wyzwania, z jakimi borykaj\u0105 si\u0119 rodziny, aby uzyska\u0107 szybk\u0105 diagnoz\u0119. Wprowadzenie CENTOGENE do regionu Azji i Pacyfiku, a konkretnie na Tajwan, mia\u0142o na celu umo\u017cliwienie pacjentom dost\u0119pu do bardziej zaawansowanych rozwi\u0105za\u0144 i odwdzi\u0119czenie si\u0119 spo\u0142eczno\u015bci, z kt\u00f3rej pochodz\u0119, zapewniaj\u0105c rodzinom tutaj takie same szanse na uzyskanie odpowiedzi, jak ka\u017cdemu innemu na \u015bwiecie.\u201c
\u2013 Andy Chang, dyrektor generalny regionu Azji i Pacyfiku, CENTOGENE APAC<\/p>\n<\/blockquote>\n\n\n\n

Odnajdywanie korzeni w spo\u0142eczno\u015bci: wizyta w Centrum Pomocy Osobom z Rzadkimi Chorobami<\/h2>\n\n\n\n

W kwietniu Emily Liang, dyrektor generalna CENTOGENE APAC, wzi\u0119\u0142a udzia\u0142 w czwartym Festiwalu Muzycznym Osmanthus oraz Dniu Rodzin z Chorobami Rzadkimi w O\u015brodku Pomocy Spo\u0142ecznej dla Os\u00f3b z Chorobami Rzadkimi, o\u015brodku leczniczym po\u0142o\u017conym w Guanxi, Hsinchu, wybudowanym przez TFRD w 2022 r. z my\u015bl\u0105 o zapewnieniu rodzinom z chorobami rzadkimi miejsca, w kt\u00f3rym mog\u0105 odbudowa\u0107 wi\u0119zi i wsp\u00f3lnie odnale\u017a\u0107 si\u0142\u0119.
Spaceruj\u0105c po tym miejscu, s\u0142uchaj\u0105c muzyki i siedz\u0105c z rodzinami tego dnia, Emily poczu\u0142a si\u0119 poruszona w spos\u00f3b, kt\u00f3rego nie da si\u0119 odtworzy\u0107 w \u017cadnej sali konferencyjnej ani w \u017cadnym raporcie klinicznym.<\/p>\n\n\n\n

\n

\u201cTo, co utkwi\u0142o mi w pami\u0119ci, to nie tylko odporno\u015b\u0107 pacjent\u00f3w. To rodziny \u2013 matki, ojcowie, rodze\u0144stwo. Ci, kt\u00f3rzy stawiaj\u0105 czo\u0142a burzom z opanowaniem i spokojem, dzie\u0144 po dniu, bez rozpoznania, bez wytchnienia\u201d.\u201d
\u2013 Emily Liang, dyrektor generalna CENTOGENE APAC na Azj\u0119 P\u00f3\u0142nocno-Wschodni\u0105<\/p>\n<\/blockquote>\n\n\n\n

Rzadka choroba rzadko jest ci\u0119\u017carem, kt\u00f3ry d\u017awiga tylko jedna osoba. Rozprzestrzenia si\u0119 po cichu na ca\u0142\u0105 rodzin\u0119: w nieprzespane noce, wizyty u lekarzy, kt\u00f3rzy wci\u0105\u017c nie znaj\u0105 odpowiedzi, i powoln\u0105, wymagaj\u0105c\u0105 nauk\u0119 trzymania si\u0119 nadziei bez \u017cadnej pewno\u015bci, kt\u00f3rej mo\u017cna by si\u0119 trzyma\u0107.
Popo\u0142udnie sp\u0119dzone w Guanxi zmieni\u0142o nasze postrzeganie naszej roli \u2013 nie jeste\u015bmy po prostu firm\u0105 dostarczaj\u0105c\u0105 rozwi\u0105zania testowe, ale towarzyszem w podr\u00f3\u017cy, tym, kt\u00f3ry walczy rami\u0119 w rami\u0119 z nimi.<\/p>\n\n\n\n

\"\"<\/figure>\n\n\n\n

Nowa wsp\u00f3\u0142praca: CentoGenome MOx 1.0 dla pacjent\u00f3w z Tajwanu<\/h2>\n\n\n\n

Nasze zaanga\u017cowanie w tajwa\u0144sk\u0105 spo\u0142eczno\u015b\u0107 os\u00f3b z rzadkimi chorobami jest kontynuowane dzi\u0119ki nowemu programowi wsp\u00f3\u0142pracy mi\u0119dzy CENTOGENE a TFRD. Inicjatywa ta, trwaj\u0105ca od 1 czerwca do 30 listopada 2026 roku, udost\u0119pnia test CentoGenome MOx 1.0 pacjentom z Tajwanu, kt\u00f3rzy przeszli wcze\u015bniej WES, ale nadal nie maj\u0105 potwierdzonej diagnozy.<\/p>\n\n\n\n

\n

\u201cDla zbyt wielu rodzin znalezienie odpowiedzi oznacza\u0142o lata niepewno\u015bci. Dzi\u0119ki zaawansowanym rozwi\u0105zaniom CENTOGENE dost\u0119pnym teraz na Tajwanie, pacjenci, kt\u00f3rzy wcze\u015bniej nie mieli odpowiedzi, mog\u0105 wyj\u015b\u0107 poza ograniczenia konwencjonalnych metod i uzyska\u0107 g\u0142\u0119bszy wgl\u0105d w sw\u00f3j stan. To oznacza now\u0105 nadziej\u0119, a ostatecznie lepsze wyniki leczenia i jako\u015b\u0107 \u017cycia pacjent\u00f3w\u201d.\u201d
\u2013 Ruth Chen, dyrektor generalna Tajwa\u0144skiej Fundacji na rzecz Rzadkich Chor\u00f3b (TFRD)<\/p>\n<\/blockquote>\n\n\n\n

Wi\u0119cej szczeg\u00f3\u0142\u00f3w znajdziesz na stronie strona programu<\/a>.<\/p>","protected":false},"excerpt":{"rendered":"

When CENTOGENE APAC officially opened an office in Taiwan, the team wanted the moment to mean something beyond the occasion […]<\/p>\n","protected":false},"author":4,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"inline_featured_image":false,"footnotes":""},"categories":[1],"tags":[],"class_list":["post-10743","post","type-post","status-publish","format-standard","hentry","category-uncategorized"],"acf":[],"yoast_head":"\nCENTOGENE APAC Expands Commitment to Taiwan's Rare Disease Community | CENTOGENE<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.centogene.com\/pl\/centogene-apac-zwieksza-zaangazowanie-na-rzecz-spolecznosci-rzadkich-chorob-na-tajwanie\/\" \/>\n<meta property=\"og:locale\" content=\"pl_PL\" \/>\n<meta property=\"og:type\" content=\"article\" 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