#WEAREGAUCHER Webinar Series

Sharing the latest insights into Gaucher disease

#WEAREGAUCHER Webinar Series

Find out about the latest news, scientific discoveries, and medical advances for Gaucher disease – register for our webinar series and join the conversation!

Enfermedad de Gaucher: diagnóstico, observación post diagnóstico y criterios para el inicio del tratamiento

(Gaucher Disease: Diagnosis, Post-Diagnosis Observation, and Criteria for Initiation of Treatment)

When: Sep 16, 2020 03:00 PM CEST

Speaker: Pilar Giraldo, MD, PhD


Pilar Giraldo, MD, PhD

Head of Clinical Hematology in the Hematology Department at the university hospital

myLSDapp: Improving Patient-Driven Treatments

When: 17 Sept. 2020 3:00 p.m. CEST

Speaker: Jordi Pérez López, MD, PhD, Head of Patient Advice and Liaison, CENTOGENE


Jordi Pérez López, MD, PhD

Head of Patient Advice and Liaison, CENTOGENE

Unmet Needs of Patients With Gaucher Disease: The Role of Patient Advocacy

When: 22 Sept. 2020 6:00 p.m. CEST

Speaker: Aviva Rosenberg, Co-Founder & Co-President, Gaucher Community Alliance & Cyndi Frank, Director of Development, National Gaucher Foundation


Aviva Rosenberg

Co-Founder & Co-President, Gaucher Community Alliance


Cyndi Frank

Co-Founder & Co-President, Gaucher Community Alliance

El papel de las organizaciones de pacientes en el diagnóstico precoz y acceso a una asistencia sanitaria especializada

When: 23 Sept. 2020 5:00 p.m. CEST

Speaker: Patricia Lucki, Vice President, ANGEL, the Guatemalan Association for Lysosomal Diseases


Patricia Lucki

Vice President, ANGEL, the Guatemalan Association for Lysosomal Diseases

Overcoming Diagnostic Challenges in Gaucher Disease

When: 24 Sept. 2020 3:00 p.m. CEST

Speaker: Professor Atul B Mehta


Professor Atul B Mehta

Quality of Life of Patients With Gaucher Disease

When: 28 Sept. 2020 3:00 p.m. CEST

Speakers: Dr. Huma Cheema, Head of Pediatric Gastroenterology Department, Children’s Hospital of Lahore and Tanya Collin-Histed, Chief Executive, UK Gaucher Association


Dr. Huma Cheema

Head of Pediatric Gastroenterology Department, Children’s Hospital of Lahore


Dr. Tanya Collin-Histed

Chief Executive Officer, International Gaucher Association

Empowering Tools for Gaucher Disease Patients: The Role of Patients in Improving Care

When: 29 Sept. 2020 3:00 p.m. CEST

Speaker: Atif Qureshi, President, Lysosomal Storage Disorders (LSD) Society Pakistan


Atif Qureshi

President, Lysosomal Storage Disorders (LSD) Society Pakistan

Challenges in Disease Management for Type 1 Gaucher Disease

When: 30 Sept. 2020 3:00 p.m. CEST

Speaker: Ari Zimran, MD, Director of the Gaucher Unit, Shaare Zedek Medical Center, Jerusalem, Israel


Ari Zimran, MD

Founder and Former Director of the Gaucher Unit, Shaare Zedek Medical Center, Jerusalem, Israel

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For inquiries related to International Gaucher Day 2020, please do not hesitate to contact us at

wearegaucher(at)centogene(dot)com.