#WEAREGAUCHER Webinar Series
Find out about the latest news, scientific discoveries, and medical advances for Gaucher disease.
Enfermedad de Gaucher: diagnóstico, observación post diagnóstico y criterios para el inicio del tratamiento
Pilar Giraldo, MD, PhD
Head of Clinical Hematology in the Hematology Department at the university hospital
myLSDapp: Improving Patient-Driven Treatments
Jordi Pérez López, MD, PhD
Head of Patient Advice and Liaison, CENTOGENE
Unmet Needs of Patients With Gaucher Disease: The Role of Patient Advocacy
Aviva Rosenberg
Co-Founder & Co-President, Gaucher Community Alliance
Cyndi Frank
Co-Founder & Co-President, Gaucher Community Alliance
El papel de las organizaciones de pacientes en el diagnóstico precoz y acceso a una asistencia sanitaria especializada
Patricia Lucki
Vice President, ANGEL, the Guatemalan Association for Lysosomal Diseases
Overcoming Diagnostic Challenges in Gaucher Disease
Professor Atul B Mehta
Quality of Life of Patients With Gaucher Disease
Dr. Huma Cheema
Head of Pediatric Gastroenterology Department, Children’s Hospital of Lahore
Dr. Tanya Collin-Histed
Chief Executive Officer, International Gaucher Association
Patient Advocacy in Developing Countries
Atif Qureshi
President, Lysosomal Storage Disorders (LSD) Society Pakistan
Challenges in Disease Management for Type 1 Gaucher Disease
Ari Zimran, MD
Founder and Former Director of the Gaucher Unit, Shaare Zedek Medical Center, Jerusalem, Israel
Contact Us
Please contact us by email with your queries.
We will be continuously updating this website with the latest information on our International Gaucher Day 2020 activities.
For inquiries related to International Gaucher Day 2020, please do not hesitate to contact us at