#WEAREGAUCHER Webinar Series
Find out about the latest news, scientific discoveries, and medical advances for Gaucher disease – register for our webinar series and join the conversation!
Enfermedad de Gaucher: diagnóstico, observación post diagnóstico y criterios para el inicio del tratamiento
(Gaucher Disease: Diagnosis, Post-Diagnosis Observation, and Criteria for Initiation of Treatment)
When: Sep 16, 2020 03:00 PM CEST
Speaker: Pilar Giraldo, MD, PhD
Pilar Giraldo, MD, PhD
Head of Clinical Hematology in the Hematology Department at the university hospital
myLSDapp: Improving Patient-Driven Treatments
When: 17 Sept. 2020 3:00 p.m. CEST
Speaker: Jordi Pérez López, MD, PhD, Head of Patient Advice and Liaison, CENTOGENE
Jordi Pérez López, MD, PhD
Head of Patient Advice and Liaison, CENTOGENE
Unmet Needs of Patients With Gaucher Disease: The Role of Patient Advocacy
When: 22 Sept. 2020 6:00 p.m. CEST
Speaker: Aviva Rosenberg, Co-Founder & Co-President, Gaucher Community Alliance & Cyndi Frank, Director of Development, National Gaucher Foundation
Aviva Rosenberg
Co-Founder & Co-President, Gaucher Community Alliance
Cyndi Frank
Co-Founder & Co-President, Gaucher Community Alliance
El papel de las organizaciones de pacientes en el diagnóstico precoz y acceso a una asistencia sanitaria especializada
When: 23 Sept. 2020 5:00 p.m. CEST
Speaker: Patricia Lucki, Vice President, ANGEL, the Guatemalan Association for Lysosomal Diseases
Patricia Lucki
Vice President, ANGEL, the Guatemalan Association for Lysosomal Diseases
Overcoming Diagnostic Challenges in Gaucher Disease
When: 24 Sept. 2020 3:00 p.m. CEST
Speaker: Professor Atul B Mehta
Professor Atul B Mehta
Quality of Life of Patients With Gaucher Disease
When: 28 Sept. 2020 3:00 p.m. CEST
Speakers: Dr. Huma Cheema, Head of Pediatric Gastroenterology Department, Children’s Hospital of Lahore and Tanya Collin-Histed, Chief Executive, UK Gaucher Association
Dr. Huma Cheema
Head of Pediatric Gastroenterology Department, Children’s Hospital of Lahore
Dr. Tanya Collin-Histed
Chief Executive Officer, International Gaucher Association
Empowering Tools for Gaucher Disease Patients: The Role of Patients in Improving Care
When: 29 Sept. 2020 3:00 p.m. CEST
Speaker: Atif Qureshi, President, Lysosomal Storage Disorders (LSD) Society Pakistan
Atif Qureshi
President, Lysosomal Storage Disorders (LSD) Society Pakistan
Challenges in Disease Management for Type 1 Gaucher Disease
When: 30 Sept. 2020 3:00 p.m. CEST
Speaker: Ari Zimran, MD, Director of the Gaucher Unit, Shaare Zedek Medical Center, Jerusalem, Israel
Ari Zimran, MD
Founder and Former Director of the Gaucher Unit, Shaare Zedek Medical Center, Jerusalem, Israel
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