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Contribute to the Transformation of Gaucher Disease Health Care
Insights to help develop treatment approaches
- Improve the long-term and sustainable patient treatment monitoring
- Help Gaucher specialists to drive treatment research
- Worldwide anonymized Gaucher patient information to help Gaucher quality of life research
- 100% consent-based, with full GDPR compliance
Trace.
myLSDapp documents your patients´ Lyso-Gb1 biomarker test results and treatment courses with easy-to-understand visuals.
Your patients can create their own disease management calendar and set up reminders.
Get a clear and simple overview of biomarker results and monitor treatment.
Track.
Keep track of your patients' quality of life.
Transform.
Drive forward innovative treatment methods with the only electronic database of disease progression that combines a patients´ medical and quality of life data in one simple system.
By monitoring treatment together, you and your patients are able to produce the best care possible.
Transform healthcare for Gaucher.
How it works
Download the patient flyer or send it directly to your patient if you are interested in monitoring and managing treatment together with myLSDapp services.
Download Patient Flyer
myLSDapp Service
myLSDapp provides your patient with biomarker testing and full
transparency of their medical results
- Get a clear and simple overview of your patients´ biomarker results
- Keep track of your patients’ quality of life
- Transform healthcare for Gaucher
Monitor your Patients’ Condition
Which biomarker plays a role in Gaucher disease?
Lyso-Gb1 has been identified as the most effective biomarker for Gaucher disease and can be easily measured in blood.1
Why is biomarker Lyso-GB1 important?
Continuous measurement of Lyso-Gb1 biomarker is essential when assessing Gaucher disease. Tracking Lyso-Gb1 aides in documenting disease progression and the benefit of treatment. This data makes it possible to examine the efficacy of therapy and, if necessary, to explore additional or alternative treatment methods.
Reference: 1 Arkadir, D. , Dinur, T. , Revel-Vilk, S. , Becker Cohen, M. , Cozma, C. , Hovakimyan, M. , Eichler, S. , Rolfs, A. and Zimran, A. (2018), Glucosylsphingosine is a reliable response biomarker in Gaucher disease. Am J Hematol.